Treating your Kidneys
Boukvat Foundation supports needy patients suffering from kidney ailments by providing them quality treatment at nominal charges
To help the needy who are not in a position to afford costly treatment for kidney ailments, a non-profit initiative called ‘Boukvat’ has been started by a group of concerned practicing medical professionals and their well meaning friends.
‘Boukvat’ is a registered NGO fully devoted to patients suffering from kidney ailments. “Kidney diseases are common in Kashmir. If the kidneys are affected permanently, chronic kidney disease (CKD) is the result,” says Dr Muzafar Maqsood Wani, Secretary Boukvat Foundation and Consultant Nephrologist, SKIMS, Soura. “In its initial stages it is managed with drugs only but at a later stage (called end stage renal disease-ESRD) besides medicines other forms of renal replacement is necessary and life saving.”
There are two treatment options for ESRD: A. Dialysis. B. Transplantation
“Both these treatments are prolonged, expensive and the cost of managing patients with kidney diseases is beyond the affordability of a common individual,” says Dr. Muzafar. “Kidney patients go through a gruesome experience during dialysis which they have to undergo for the rest of their lives, unless they go for a transplant”.
‘Boukvat’ has been established with the objective of supporting patients suffering from kidney illness. ‘Boukvat’ bears the cost of dialysis/transplantation and medication of those kidney disease patients who belong to lower socioeconomic strata for some period. This is reimbursed to the centre where that particular patient is being dialysed or gets transplant operation. In rare instances direct financial assistance is given to any patient.
‘Boukvat’ may in the long run donate/install Dialysis Machines at various centres, where Dialysis charges will be nominal/free as against Rs 1000 to Rs 1250 charged otherwise. Needy patients will be treated at concessional rates and even free of cost. The aim of ‘Boukvat’ is to support patients suffering from kidney disorder by providing them quality treatment at nominal charges or free of cost.
Further, ‘Boukvat’ Foundation will provide some monetary support for drugs required during dialysis or transplantation and conduct health checkup camps only for kidney diseases. The foundation also distributes literature and scientific articles to the patients, physicians and public on various topics related to kidney disease and organ transplantation.
Boukvat has been registered a year back and it has recently started its work. In the month of Ramadhan the foundation floated mails and carried advertisements for monetary help. It received good response and the foundation intends to launch a wider campaign about increasing the members who could donate to the foundation on monthly basis (Rs 50/100/200 per month).
The necessary documents of person who approach the foundation for help are scrutinized by the core members of the Boukvat Foundation who are mainly nephrologists and possess the know-how of kidney related diseases. They are well acquainted with the sufferings of kidney ailments through patients and through personal experience. After this they send the recommendations to the Boukvat Foundation President Dr Shahida Mir, Ex-Principal GMC Srinagar and HOD OBG; Secretary, Dr Muzafar Maqsood Wani, Consultant Nephrologist, SKIMS, and Joint Secretary, Dr Imtiaz Wani, Consultant Nephrologist, SKIMS, Soura for final approval.
A simple application by the patient or his relative along with ration card and medical documents are to be provided to the foundation. The foundation screens them and then the President, Secretary or two members decide about the monetary benefits to be provided to the patient concerned. “We can provide the dialysis centre with the dialysis charges or give monetary help at the time of kidney transplant surgery,” says Dr Muzafar. The association plans to set up an office in the city soon. So far only few patients have been provided help for dialysis. The Foundation has identified some more patients who will be provided help for transplant surgery in the coming two months.
Many doctors and businessmen have appreciated this initiative and are willing to help the Boukvat Foundation. The Foundation intends to increase the number of donors after a proper campaign. The donations for the Boukvat foundation can be deposited in Bank account number CD-609, J&K Bank, SKIMS Branch.
The Foundation is also in the process of writing to national and international organizations for help and support. The first priority of the Foundation is to strengthen its base and involve both Kashmiris and Non Resident Kashmiris
“Once we declare a person has chronic kidney failure it shatters the patient and his entire family. There is physical, psychological, monetary involvement of the near and dear ones,” says Dr Muzafar. “On dialysis a person can live for long but this is not the modality of choice for most of our patients as dialysis is not available throughout Kashmir.” Transplantation, if successful, is the procedure of choice for such patients, he says, but it is not so easy. “One needs to have a suitable donor who is willing to donate his/her kidney. This is a huge sacrifice on part of the donor and the most important person in the transplant program is the donor,” he explains. “Investigations are carried on the donor with a huge panel of investigations which include blood, urine, radiological etc. Preparing a patient for transplant takes about 3-4 weeks in our setting and after that the team goes ahead with the operation which is done by a special team.”
The person who is transplanted is called the recipient who stays admitted in the hospital for 10-12 days after which he can go home or stay close to the hospital for 6- 8 weeks, beyond which he can live a normal life. “The only concern till about six months post surgery is to be infection free and for that the person has to be away from the crowd or an infectious setting,” says Dr. Muzafar.
The donor is usually discharged within five to six days after the surgery. Within 2 weeks of surgery the donor is fit to resume his normal routine. “We as doctors make all efforts pre-operatively to see that no untoward event happens to the donor and it has been well documented that a person who donates his/her kidney does not have any long term problems at least up to 20 to 30 years after the surgery,” he adds.
Dr. Muzaffar says Kidney related ailments are common. “First with increasing age of the population more patients with underlying diabetes and hypertension develop kidney involvement which can range from mild to severe in some cases,” he says. “Per se primary kidney disease involving glomerulus and tubulointerstitium is also common cause of progressive kidney involvement. Hereditary diseases of kidney and stone diseases damaging the kidney are rare causes of chronic kidney disease which needs dialysis or transplantation.” He says about 3000-5000 patients will need to start dialysis or have kidney transplant every year in Kashmir.
About urination problems in females and male patients, Dr. Muzzafar says, “In woman urinary problem (urinary tract infection) is an issue throughout. However, in men it is more so an issue after 50 years of age. Stone disease is as common in men as it is in women.” Some hereditary diseases like polycystic kidney disease and other inherited diseases can cause renal failure but their incidence is lesser, about 2 to 3 percent of total dialysis/transplant patient.
“We have a dedicated kidney transplant unit including nephrologists, transplant surgeons, anesthesiologists, immunologists, nursing and paramedical staff,” Dr. Muzzafar says about the facilities available in Kashmir for kidney transplant. “All pre-transplant investigations are done here,” he points out, “and of late we have excluded a major immunological investigation from our protocol saving time and money.”
“Surgery is free and we give a months’ supply of medicines free of cost and also try to help the deserving patients as much as we can,” Dr. Muzafar adds. “We may have some lacunas but hopefully we will overcome them.”
Myths, Misconceptions and Facts about Kidney Diseases:
Basic functions of the kidneys are to produce urine only?
Fact: No, besides making urine they help in maintaining acid/base, water and electrolyte content of the body so that every organ can function properly. They help in excretion of various waste products of metabolism and drugs from the body and are involved in production of hormones for bone growth (Vitamin-D), blood production by the marrow (Erythropoietin) and maintaining blood pressure (Renin).
Kidney disease is Hereditary?
Fact: Very few kidney diseases are hereditary, like polycystic kidney disease. Most common causes of acute kidney disease are volume depletion, drugs and infections while as high blood pressure and diabetes are common causes of chronic kidney disease.
Self medication is safe for kidneys?
Fact: No. Medications especially pain killers and antibiotics can damage the kidneys especially in elderly, diabetics and hypertensive patients.
Whether Single or double kidney failure?
Fact: All medical diseases affect both the kidneys simultaneously. Kidney failure refers to both the kidneys not functioning. If a single kidney is not functioning the blood urea and creatinine will not go up.
Water should be consumed in large quantities by kidney patients?
Fact: Not always. Drinking plenty of water is best way to prevent kidney stone formation by flushing out insoluble wastes. Water intake should depend on urine output and should be around 2 L /day (more in hot climate). Often restriction in water consumption is required in CKD patients since maintenance of water balance in the body is one of the functions of the kidneys.
Beer drinking is good for the kidneys?
Fact: Beer, because of its large content of water increases urine output and does not improve kidney function.
Salt substitutes can be used in kidney patients?
Fact: Salt substitutes being potassium chlorides are more dangerous in patients with kidney failure as potassium excretion is already affected in them.
Kidney stones are rare?
Fact: No. they are one of the most common disorders of the urinary tract. Up to 10% of individuals will have a kidney stone at some point in their lives, and most will be between the ages of 20 and 40.
Only adults get kidney stones?
Fact: Even children can get them. Most children with kidney stones usually have a genetic or metabolic disease that makes them more likely to form stones. If there is family history of kidney stones, one is more likely to develop them.
Eating certain foods will cause kidney stones?
Fact: Not usually. In general, eating any specific food does not cause kidney stones to form in people who are not already susceptible. In people who are susceptible a diet high in protein may lead to kidney stones because extra protein causes calcium to be excreted from the body, raising calcium levels in the urine. Foods that contain high levels of oxalate, which include chocolate, coffee, dairy products, spinach, tomato and asparagus and some fruits should be restricted in kidney stone patients. Vitamin C can result in stone formation since it is ascorbic acid that is broken down by the body into oxalic acids. Eating junk food can cause kidney stones especially among children, since junk foods may contain insoluble proteins and fats.
Most kidney stones are formed from calcium, so calcium in the diet should be reduced?
Fact: That used to be what doctors thought, but no longer as several studies have shown that low-calcium diets are not effective, and may actually be harmful, since they tend to increase the likelihood of osteoporosis.
Dialysis once started has to be permanent?
Fact: This depends on whether the patient has acute or chronic kidney failure. Acute failure might require only temporary dialysis while as chronic kidney failure patient will need lifelong dialysis or till the time he/she goes for a transplant.
It is not safe to donate a kidney?
Fact: If the general health of the donor is normal without diabetes or blood pressure, it is safe to donate a kidney. A large number of tests are done to be 100% sure that nothing untoward happens to donor should he /she donate kidney. Donors have led a normal life including marriage and childbirth.
For transplantation do we need 1 or 2 kidneys?
Fact: One will do. Original diseased kidneys most of the times kept in and not removed. Transplanted kidney kept in right iliac fossa. Even 2nd, 3rd and rarely 4th transplantation have been performed if the transplanted kidney also fails.
Only living can donate?
Fact: Besides living donors, one can take an organ from brain dead patient if he/she had consented for same before. Majority of donated kidneys in west are from brain dead patients.
Lastupdate on : Thu, 5 Sep 2013 21:30:00 Makkah time
Lastupdate on : Thu, 5 Sep 2013 18:30:00 GMT
Lastupdate on : Fri, 6 Sep 2013 00:00:00 IST
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